Residents for Respectful Research

The purpose of Residents for Respectful Research (R3) is to ensure that low-wealth residents understand, have input on, and benefit from research conducted on/with members of their community . Our residents are concerned about how research data are gathered and used, and how their lives are represented.

Why does Residents for Respectful Research (R3) need to exist?

· Historically, low-wealth, Black and Brown bodies have been used for research that has at times been detrimental to their health, such as the Tuskegee Experiments, or has enriched others, like HeLa cells, which revolutionized research, but only recently have benefitted the family of Henrietta Lacks.

· Here in Charlottesville, Faculty and students at the University of Virginia frequently perform research impacting our community.

On January 23, 2010, the late Dr. Holly Edwards & R3 Steering Committee member Karen Waters spoke truth to power on this subject at the Paramount Theater on a panel with University Professor James Childress, director of the Institute for Practical Ethics and Public Life.

UVA Honorarium Definition: A honorarium is a token of appreciation paid to an individual for services performed when payment is not required. The arrangement between the individual is informal. It does not involve a contract, and invoicing is not required.

PHAR, in using the below template provided by the Equity Center,  promotes and recognizes the important and invaluable contributions, perspectives and knowledge of our community members, elders, leaders, and knowledge keepers. We hold ourselves in a place of truth, honesty, respect, and reciprocity with our community relationships which extends into how we equitably exchange knowledge and expertise for compensation. 

Service/Knowledge Provided from Community ExpertUVA “Academic” Equivalent Average time commitment Compensation Exchanged 
Participation in a panel discussion Professor 1 hour of time 1 plus planning (using $75 per hour rate) $150 per panel member
Advising program design, program implementation, data analysis or program evaluation, Program Evaluator or TA ProviderVaries, 5+ hours (depending using $75 per hour rate) $375
Community mentoring College/Career Advisor15+ hours$500
Facilitator of a discussionVisiting Professor/Special GuestAverage rate of facilitation is between $200 per hour for 2 hours of prep + discussion time $600
Leadership committee (chair or co-chair), knowledge group, or community knowledge council Professor, ConsultantOngoing, yearly, or quarterly commitment. $5,000
Participation in a committee, knowledge group, or community knowledge councilProfessorOngoing, yearly, or quarterly commitment.$550
Co-researcherProfessor, Research Specialist $75 per hourBudgeted based on length and scope of research project. Could also be an invoiced service. 
Traditional Knowledge Keeper, Elder, or Spiritual AdvisorM.D. or Clinical Psychologist$100+ per hourPer hour rate of services rendered for the community or knowledge exchanged. 

How does R3 work?

PHAR, with the support of the Equity Center has partnered with UVA’s Institutional Review Board for Social and Behavioral Science to create a community research review board comprised of CITI-trained low-wealth residents who review and approve protocols containing specific keywords in advance of IRB-SBS review. Additionally, they engage with researchers to provide opportunities to share their data and outcomes with the community, as well as provide insight into research questions relevant to their neighbors.

The purpose of Residents for Respectful Research (R3) is to assure that public housing residents understand, have input to, and benefit from research conducted on/with public housing residents – whether that is by senior faculty or students. There is widespread concern among public housing residents of how research data are used, and how their lives are represented. In addition to rarely receiving the benefits of research done in their communities, uncoordinated research places time burdens on residents. For example, many have to answer basic demographic, economic or health status questions whenever a project gets started.

Meet the Team:

Wendy Gao, R3 Coordinator
wendy@pharcville.org

Resident Reviewers:

Antigone Grant

Porcha Herndon

R3 Steering Committee

Ms. Karen Waters – Chairwoman of R3 Steering Committee

Ms. Joy Johnson – PHAR Board Chair

Todd Niemieir – Office of Human Rights

Pam Houndjo – Virginia Organizing and IRB member

David Edmunds – UVA Professor of Global Studies

Laura Goldblatt – UVA Professor of English & Global Studies and CRHA Commissioner

Rupa Valdez – UVA Professor of Systems and Information Engineering, Public Health Sciences, & Global Studies

Kathleen Glenn-Matthews – PHAR Advisory Board and CRHA Assistant Director